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The First Steps in Selecting an Egg Donor

Tuesday, March 23rd, 2010 by lindsay

Deciding whether or not to use an egg donor can be a major decision that impacts the rest of your assisted reproduction process. For some of you, it’s an assessment that will take months to decide- where do you go to find a donor? Will you use an anonymous program? Has the donor been properly screened?

But where do you really start? The American Fertility Association created an introductory piece that details the very basic steps in choosing an egg donor.

For more information about how IARC selects their egg donors and makes them available for you, head back to our home page. Or email IARC at info@iarc-usa.com.

Getting Started with Egg Donation: First Decisions
By: Jan Elman Stout, Psy.D and Peggy Orlin, MS, MFT of the AFA Mental Health Advisory Council

Those needing an egg donor to achieve a pregnancy have choices to make. The most basic of these is how to recruit a young woman who is willing to donate her eggs. There are basically two options, known and anonymous donors. Known donors are women with whom you have a preexisting relationship, typically relatives or friends. Anonymous donors are strangers who are recruited for you by your medical program or donor agency. In a hybrid version you might recruit your own donor through the internet. We are going to address some of the perceived benefits and disadvantages in selecting known or anonymous donors and some issues unique to each type.

You might decide to work with an anonymous donor because nobody in your circle has offered you her eggs or you don’t know anyone you can ask. If you choose an anonymous donor you will receive varying amounts of background information about her, depending on whether she is recruited by a medical program or an agency, and which one. Some provide you with great detail about phenotypic, demographic, medical/health, family, academic, occupational, reproductive, sexual, social and psychological histories, others very little. Some will provide you with pictures, others will not. Some will allow direct contact providing all parties are agreeable. This might include a face-to-face meeting, typically facilitated by a mediator, which can be conducted without exchanging identifying information and no expectation of future contact and still be considered an anonymous arrangement. The information you are given on your donor may vary most based on your geographic location. However, these differences may soon decrease, as the Society for Assisted Reproduction (SART) has just released a Universal Donor Application Form. All donors, no matter how they are recruited, should undergo medical testing based on ASRM and FDA guidelines. All egg donation participants should also undergo in-person psychological screening by a licensed mental health provider familiar with ASRM and MHPG guidelines.

You might prefer an anonymous donor if you want clearer, more rigid boundaries between the donor and you than a known donation arrangement can provide. Likewise, if you are highly concerned about protecting your ability to make independent decisions and maintaining your privacy as parents. Working with an anonymous donor might free you from an obligation to put others’ feelings and preferences ahead of your own.

While anonymous donation has its advantages, it is not without risks. Recipients often worry about whether strangers misrepresent their histories and what the implications of lying might be. You might be unable to pay the added fees required in an anonymous arrangement or resent having to do so. You might worry that your anonymous donor will knock on your door one day or want your child. You might be afraid your donor will donate repeatedly, creating a large number of genetic half-siblings for your child. Although more fear than reality, if these worries loom large and can’t be tamed, you might feel more comfortable working with a known donor.

For many people, known ovum donation has some distinct advantages. If you choose a family member, you will share some genetic connection with your child. If your donor is your sister, you will share her version of your parents’ DNA. Using a known donor means you will always be able to know or access medical information about your child. And, if the child is told about the donation, s/he will be able to talk with his/her donor and ask his/her own questions. Your family may be more likely to love and accept your child if the donor is known. In some cultures where boundaries between family members are less clearly defined, Auntie or Uncle can be used almost interchangeably with Mama or Daddy. For these families, the use of a known donor can feel like a very safe, secure proposition with few downsides.

As mentioned previously, known donation may create complicated relationships. Unless the donor lives far away, she may be in your child’s life. While having family close by can be a blessing, having your donor nearby doesn’t always feel that way. Although everyone entering a known donation relationship expects all will go well, it does not always. Sometimes parents are surprised by the protective feelings that develop for their child even from loved family members. Some people choose donors who are advice givers and would always feel comfortable offering parenting advice. Will it feel the same if she is your sister AND your donor? Do you worry that your best friend will feel obligated to donate and later regret her participation? Do you fear that your sister will treat your child more like a son than a nephew? Are you concerned that you will be unable to repay this gift, and forever indebted to your cousin, and will have to do whatever she asks for the rest of your lives? Do you feel uncomfortable because it feels like your husband and your best friend are having a baby? The prevalence of these kinds of fears might mean you’d feel more comfortable with an anonymous donor.

What all this suggests is that no arrangement is right for everyone, as there are pluses and minuses on all fronts. If you are having difficulty choosing your path, consult with a mental health professional who can help you clarify it.

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Peggy Orlin, MS, MFT, is a Marriage and Family Therapist who specializes in the emotional aspects of infertility and third party family building. She is in private practice in Berkeley and San Francisco. Her professional associations include the American Society for Reproductive Medicine, where she was a former Chair of the Mental Health Professional Group. She is on the Mental Health Advisory Boards of the AFA.
Peggy can be reached at 510-528-2750

Jan Elman Stout, Psy.D. is a licensed clinical psychologist specializing in infertility counseling who has recently relocated from Chicago, Illinois to Houston, Texas. She is a past Chair of the Mental Health Professional Group of the American Society for Reproductive Medicine and currently serves on the Mental Health Advisory Council of the American Fertility Association. She can be reached by email at ElmanStout@aol.com

New York Times Article about Surrogacy has a Few Holes

Wednesday, December 30th, 2009 by kimpost

 

The New York Times recently published an article on Sunday, Dec. 13 about surrogacy and its possible effects on the resulting children, intended parents and gestational carriers.

Excerpt:

 

But as the dispute over the Michigan twins reveals, surrogacy arrangements that go badly can have profound implications, particularly for the children.  Surrogacy is largely without regulation, with no authority deciding who may obtain babies through surrogacy or who may serve as a surrogate, according to interviews and court records.

 

Instead, surrogacy is controlled mainly by fertility doctors, who determine which arrangements are carried out and also earn money by performing the procedures.  And while some agencies that coordinate surrogacies and some clinics that carry them out strictly adhere to guidelines, others do not, the interviews and records show.

 

The lax atmosphere means that it is now essentially possible to order up a baby, creating an emerging commercial market for surrogate babies that raises vexing ethical questions.

 

I was in Washington, D.C. on the day this article was published.  I was there to attend a meeting that the American Society of Reproductive Medicine (ASRM) had arranged for leaders in the fertility field to discuss options for the oversight of assisted reproduction (including third-party reproduction such as surrogacy).  I received a text message from a colleague on Sunday morning asking if I had read The New York Time, commenting that, “This is just what we need right now!” (sarcastically, of course).  We both knew that this article was definitely NOT what the field of fertility medicine needed right now.

 

The article was just the latest in a barrage of media sensationalism casting fertility physicians, related professionals, and patients in the worst possible light.  Riding on the heels of the Octomom, Nadya Suleman, and other highly publicized adverse outcomes, this article fuels the misperception of the general public that these individual negative outcomes are representative of the practice of fertility medicine as a whole.  They are not, yet they could easily lead to negative, overly restrictive legislation that limits the access of all patients to desirable and viable family-building alternatives such as surrogacy.

 

The luncheon keynote speaker at the D.C. meeting was Liz Mundy, a Washington Post staff writer and author of Everything Conceivable.  A member of the audience asked her in light of The New York Times’ article why the media always seems to focus in on the negative stories about surrogacy and fertility treatments instead of the many, many more heart-warming, positive stories?  The question left her without a quick response, and she eventually conceded that that was just how the media operated.  Negative stories often sell more papers.  There was no indication from the podium that that would ever change.

 

I do not believe that fertility medicine or its patients should be defined by rare negative outcomes.  It took over twenty-five years of in vitro fertilization (IVF) for a patient with questionable judgment and suspect motives (Ms. Suleman) to come under the care of an unwise and irresponsible physician (Dr. Michael Kamrava) and to set the stage for a one-in-a-million physiological outcome (8 babies from 6 embryos) that was the Octomom case.  This should not be the case by which thousands of responsible and successful IVF patients and cycles are judged.  The reporter in The New York Times article researched diligently and focused on a mere three negative surrogacy cases that have occurred since 2004 in order to write her rather accusatory and condemnatory article.  These relatively rare occurrences should not define either surrogacy or the ethical standards of the professionals or intended parents who participate in and facilitate the process. 

 

Yet the Michigan case does send those who want to participate in the surrogacy process, both professionals and intended parents, some clear signals.

 

 The intended parents in the Michigan case found their surrogate independently through a surrogacy site on the Internet, surromomsonline.com.  There is no information on what kind of screening the intended parents did on their selected surrogate, which may very well mean that there was none, but there was clearly an insufficient exchange of background information and personal history.  In this instance, the surrogate was never told that the intended mother suffered in the past from schizophrenia but had been under successful medication for the condition for the eight years leading up to the surrogacy arrangement.  This came as an unwelcome surprise to the surrogate at the end of the process.  The surrogate, intended parents and fertility clinic apparently proceeded with the surrogacy arrangement without the typical psychological screening of the surrogate (or intended parents) that is clearly recommended by ASRM ethical guidelines.  The parents also initiated a surrogacy program that is a rare outlier among typical surrogacy programs:  One in which neither intended parent’s egg or sperm is used.  Most importantly, the intended parents lived in and selected a surrogate from Michigan, a state which criminalizes aspects of surrogacy and expressly states that surrogacy agreements are unenforceable. 

 

So, what signals does this unusual case send?

 

First, my experience is that, for whatever reason, self-matched and do-it-yourself surrogacy programs are the most likely to break down, frustrate the parties’ original intentions, and cause negative legal and media outcomes.  I don’t work on my car because it is too complicated for me to figure out.  Any maintenance I perform will, undoubtedly, cause more harm than good.  The same is true for surrogacy.  It is even more complex than any modern automobile, combining medical, psychological, legal, insurance, financial, administrative and tax issues, just to name a few.  Rather than substituting their judgment for a single auto mechanic, the intended parents are substituting their judgment for numerous medical, psychological, and legal professionals.  Eliminating any one of these professionals can cause the program to fail unexpectedly, but inevitably.  Any intended parent who tries to conduct a do-it-yourself surrogacy program is, quite simply, begging for trouble.  The Michigan parents did it themselves, and their surrogate is now the custodial mother of their prospective children.

 

Second, finding a surrogate online at any mass Internet clearing house for surrogates is a very bad idea.  There is just no way to be certain of the qualifications, suitability, or reliability of the surrogates who are marketing themselves there.  Virtually all of the worst surrogacy cases that I have witnessed or heard of have involved either a relative or an online “independent” surrogate.  The vast majority of suitable surrogates work through reliable agencies that carefully screen and prepare them for the process.  Working through an agency provides only benefits with no detriments to any qualified surrogate candidate.  Therefore, the surrogates who don’t work through reputable agencies but market online are often (but not always) those who cannot successfully qualify to work through an agency.  That means that they may have significant physical, psychological or legal conditions that should disqualify them from the process.  The only way they can act as a surrogate is to circumvent the agency screening process and work independently.  By circumstances and definition, online independent surrogates are more risky than well-screened, carefully vetted agency surrogates.  The Michigan couple selected an online surrogate, and now their surrogate kept the twin children, justifying it by citing, “ . . . God placed this on my heart for a reason.”

 

Third, every surrogacy program has countless steps that need to be done in a certain order and NONE of which should be skipped.  One of them is thorough screening of the surrogate and complete disclosure of life facts and circumstances between the parties.  A psychological screening by an experienced and qualified ASRM member social worker or psychologist is ESSENTIAL to the screening of any surrogate.  The screening serves to educate her on relevant issues and evaluate her ability to complete the process as intended.  It includes certain psychological testing and an analysis of the surrogate’s support and belief systems.  In addition, a criminal background check, maternity record review, and insurance coverage review are critical parts of the surrogate’s qualifications that should be conducted.  Surrogates who have criminal records, have been psychologically disqualified, or have had dangerous previous pregnancies or deliveries are not suitable candidates.  Whether the parents should be screened is a subject of some additional debate since it bears on a couple’s constitutional right to procreate (to the extent that such a right exists, if at all).  Some believe intended parents should not be screened since parents who have their children without medical assistance are not screened.  In any case, screening of the parents will often identify and raise topics for disclosure to and discussion with the surrogate.  In the Michigan case, insufficient screening was done, and, not to beat a dead horse, the absence of the screening and the discussions that it may have engendered resulted in the intended parents remaining childless at this time.

 

Fourth, the intended parents in the Michigan case pushed surrogacy to its logical limits by not using any of their own reproductive components for the pregnancy.  Independent donors provided the egg and sperm, and the pregnancy was carried by a surrogate.  This is VERY unusual for most typical surrogacy programs.  However, is there a minimum number of components that should be required for a reproductive program?  If intended parents can use a sperm donor OR an egg donor OR a surrogate, OR a donor and a surrogate, what is the logical argument that using all three such components converts the surrogacy process into something less necessary or honorable?  As was so clearly stated by the California Supreme Court in a 1998 surrogacy case in California (Buzzanca in which two donors and a surrogate were used), it is the original, pre-pregnancy INTENT that initiates and implements the medical program and the resulting pregnancy that distinguishes surrogacy from adoption, not the number of components that are required to bring the pregnancy about.  The original intent of all of the participants in the Michigan case is crystal clear – the intended parents were supposed to end up with the children.  I think people should be held to their promises.  Nevertheless, the writer of this article clearly casts doubt on the propriety of such an arrangement.

 

Finally, the entire surrogacy program was done by parents and a surrogate in Michigan.  Surrogacy agreements are specifically stated to be unenforceable BY LAW in Michigan.  Conducting a surrogacy in a state where it is illegal or unenforceable (like Michigan, New York, Washington, D.C., etc.) or using a form of surrogacy that has never been enforced in a contested case, like traditional surrogacy using artificial insemination with the surrogate’s own egg, is a very clear AND A VERY UNWISE risk (especially with an unknown surrogate found on a questionable Internet site with inadequate screening).  If a dispute arises, it is clear in such cases that the intended parents will NOT prevail.  All of the previous shortcomings discussed above could have occurred and the intended parents might still have ended up with custody and parentage of their children if only they had used a surrogate in a state with more established and favorable surrogacy law.  Michigan is clearly not that state, and, when a dispute arose, the intended parents had lost before it ever started because of the law.  NEVER conduct a surrogacy in an unfavorable legal climate unless you are willing to accept the risk of completing the process and not receiving the resulting children as intended.

 

There is a right way and a wrong way to participate in a surrogacy program.  The Michigan parents chose all the wrong ways.  I do not begrudge them either their effort or opportunity.  Perhaps they could not have afforded to do it any other way, which is another lengthy blog entirely.  However, I feel they cannot now complain about the outcome.  They preordained it by their unwise choices.

 

As for the reporter, I do not necessarily disagree with some of her premises.  Surrogacy is loosely regulated by practice and ethical guidelines promulgated by the ASRM.  However, those guidelines DO establish reasonable parameters, which, if followed, lead to highly reliable outcomes.  Contrary to the picture painted by The New York Times’ writer, surrogacy is a very reliable and successful family-building option.  Though there are no formal statistics, an anecdotal reference in an article published in 2002 indicated that contested surrogacies occur in less than one-half percent of all surrogacies.  As far as I’m concerned, that evidences a pretty reliable process. 

 

I think it’s an overstatement to say that surrogacy occurs without regulation.  It occurs with the same self-regulation that works successfully in all other areas of medicine.  Could surrogacy benefit by a more enforceable set of guidelines?  Perhaps, but at what cost?  Would the mere process of setting guidelines result in unfair limitations to intended parents’ access to surrogacy or the existence of surrogacy overall?  Quite possibly.  There are no simple solutions.  The American Bar Association Assisted Reproductive Technology Committee is currently grappling with these complex issues of appropriate and reasonable regulation.  It is working hand-in-hand with the ASRM, patient organizations, and other professionals who facilitate fertility programs for aspiring parents.  I believe that the stakeholders will come up with appropriate solutions.  I am not opposed to such participative regulation.  I am opposed to knee-jerk legislation by politicians who know little or nothing about the fertility process and are motivated by and rely solely on misleading media reports such as The Times’ article.

 

Surrogacy has resulted in hundreds of happy new families every year.  Surrogacy is nearly always conducted in a responsible, reliable, respectful way by the professionals and participants involved.  Do not judge a book by its cover, and do not judge fertility medicine or surrogacy by the rare exceptions.  Neither the Michigan case nor any of the other stories in The Times’ article are representative of the surrogacy process as a whole. 

 

I firmly believe that media coverage of fertility medicine should be proportionate to the outcomes.  If there are thousands of success stories for every sad story in fertility, there should be thousands of positive media articles for every critical one.  It would be only fair. 

 

Steven H. Snyder, Esq.

 

 

 

A short introduction to IARC’s new blog

Sunday, July 26th, 2009 by admin

Welcome to the International Assisted Reproduction Center’s (IARC) new blog! We’ll be using this feature to help keep Intended Parents, Egg Donors and Surrogates alike updated on issues surrounding assisted reproduction.

Feel free to leave comments about these topics. As always, please contact our office by phone or email if you’re interested in learning more about our programs!

 

IARC Team
763-494-8800 – main
Info@IARC-USA.com

 


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